tag:blogger.com,1999:blog-5039259874525185430.post8340038651281950468..comments2023-05-31T04:39:24.231-07:00Comments on Intentional Family: Eyes can be scaryRKhttp://www.blogger.com/profile/11259757888643034394noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-5039259874525185430.post-49537826464310578492011-04-24T18:38:23.665-07:002011-04-24T18:38:23.665-07:00It looks like the procedure has a high success rat...It looks like the procedure has a high success rate, but I've had the same thoughts about surgery. I don't know if it will be an option for Goldie. We still can't get in to see her ophthalmologist. (he moved to another state) <br><br>We took her to a developmental optometrist and he prescribed prism lenses for her. When she wears them they do help her head tilt. For the first time she was able to watch tv without her head tipped way back. <br><br>Thanks for the update. I learned some new things About nystagnus!Brandiehttp://www.blogger.com/profile/01704697731192764110noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-3710264664869433242011-04-21T19:50:37.558-07:002011-04-21T19:50:37.558-07:00Sending thoughts and prayers! Keep us posted!Sending thoughts and prayers! Keep us posted!Riahttp://www.blogger.com/profile/06737298798388579270noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-59149380476945850822011-04-20T17:39:26.406-07:002011-04-20T17:39:26.406-07:00Man alive. I'll be prayin for ya all, hope yo...Man alive. I'll be prayin for ya all, hope you feel more at ease after you talk to the doc on Monday. Glad you are starting to get some answers!Jessiehttp://www.blogger.com/profile/13088283351739864404noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-81397507700773317512011-04-20T07:29:30.198-07:002011-04-20T07:29:30.198-07:00You all will be in my prayers. Love ya.You all will be in my prayers. Love ya.Carolynhttp://www.blogger.com/profile/05349811420617687488noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-58775463018165034902011-04-20T06:37:37.355-07:002011-04-20T06:37:37.355-07:00Wow. It IS nice o have answers and options, but I ...Wow. It IS nice o have answers and options, but I definitely feel you on the difficult decisions. Thinking about you all!Triciahttp://www.blogger.com/profile/12595026999757410223noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-33253588332188157092011-04-20T04:48:58.934-07:002011-04-20T04:48:58.934-07:00Hi RK, I can understand you being scary for the Ey...Hi RK, I can understand you being scary for the Eye surgery. Just to think about it is scary. I will be praying for Braska and you guys.Rosa Mariahttp://www.blogger.com/profile/02563282224117081649noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-12595185939210296622011-04-19T22:11:27.797-07:002011-04-19T22:11:27.797-07:00Just checking in. Looks like we went to the eye ap...Just checking in. Looks like we went to the eye appointment on the same day. Yes eyes are scary. I so can understand this post about choosing surgery for eyes. While at the office and Wysdom was crying the doc asked if I wanted surgery. I paused for a minute or so to think about it. Yes it is a choice. <br><br>Sounds like you are close to surgery. Wysdom has Nystagmus but I don't notice it that much. Strabismus is a bigger issue for us right now. <br><br>Thanks for sharing as I can so relate and had a rough day with the eye appointment. Sounds like you are at a good hospital to do it.Sashahttp://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-70198194776025608932011-04-19T20:32:11.049-07:002011-04-19T20:32:11.049-07:00RK - so thankful I took time to read some blogs to...RK - so thankful I took time to read some blogs tonight...we just had an appointment with our eye dr...Addie has the same thing, head tilt, nose in the air nystagmus, finding the null point...and when they put glasses on Addie to correct her vision (near sighted in one eye, and far sighted in the other) her right eye, which has been turning in more frequently, got worse and turned in quite often...so our dr. is doing some research, but I'm thinking I'm sending her some info on this diagnosis as it seems to be very familiar...do you have any other sources or websites you have found useful?<br>Thank you so much!!!! Good to catch up with you guys!Erinhttp://www.blogger.com/profile/07047212700425050490noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-19486013913370997472011-04-19T20:23:02.915-07:002011-04-19T20:23:02.915-07:00RK - I see you everywhere online & you're ...RK - I see you everywhere online & you're on my reader but I haven't "introduced" myself because I haven't read all your archives & always think that's kind of odd, to jump in like that. I realized bit ago we're in the same area (you were the Pujol's brunch, yes?) - my daughter JUST had eye surgery last week, at Children's no less. Our eye doc see a lot of SN kids - though my girl had strabismus correction (again), so slightly diff deal. They may be even part of same practice, who knows? Anyway,I had the exact same feelings about the eye surgery (it's elective! GAH!) since we had AVSD repair too - drop me a line if you want the longer version.krlrhttp://www.blogger.com/profile/14392064691347464660noreply@blogger.comtag:blogger.com,1999:blog-5039259874525185430.post-21092855199355681452011-04-19T20:20:17.888-07:002011-04-19T20:20:17.888-07:00Lots of thoughts and prayers for B!!!Lots of thoughts and prayers for B!!!J-Rob; Jenhttp://www.blogger.com/profile/17070840758857616628noreply@blogger.com