Multi-distractional

I found Braska this way this afternoon. Angry Birds on her Nabi next to her doodle. And she would send a bird flying then go scribble for a bit. Then reach over and launch another bird. She counted it a successful snow day.

A busy bee day

I gotta go to bed, but here’s a quick peek at what we did today.

First I got dressed for school.  I put on different stuff than usual so I could put my bumblebee dress on at school easier than changing all my clothes.  Everyone at school liked my outfit AND my bumblebee dress, too!

(This is the look I give Mommy most of the time when she takes pictures.  She just wants me to look and smile. But I get her every time. It’s what the cool kids do.)


Then I got down on the floor before we left for school and looked at my book by the mirror.  It makes TWO books when you do it that way!


Then we went to school. Mommy came back to school early today, and we put on my bumblebee dress and hat for my teachers and friends to see.  But I only got to stay a few minutes because I had to go see Miss Sue.  Mommy calls it “feeding therapy” but I just think it’s like a snack that I have to work really hard for.


After school, we went to a place with a playground so we could have a little party for Jack’s birthday.  It was fun with me and KiKi and Jack.  We climbed and ran around.  Jack could do a magic trick where he stuck his foot WAY up and then got up on top of us.  I don’t know how he did it!  He is SO strong!  See his foot way up there??


When we were done playing, we had some ice cream.  (I really like ice cream!  It’s one of my new favorite things!)  Then we took a couple of pictures before we went home. 

Jack: Braska, you’re silly.  You never look when your Mommy says to say, “Cheese!”  You’re supposed to smile like this…


Braska: I give up.  Someone just take the picture so we can go.  Hip Hip Hooray.

After we slept on the way home (and after KiKi got sick all over her car seat and her clothes), we felt better and played for the rest of the day.

Happy Birthday, Jackson! See ya tomorrow for your Day After Party!

Mommy life: A big evening!

Braska's been holding out on her therapists. In the therapy sessions, they try and try to get her to reach for things, but she's completely uninterested in any of the zillions of toys that have been presented. She just recently, like in the last few days, has been starting to reach for my hands when I go to pick her up, and that's been fun for us. She doesn't really reach up, like she's asking to be picked up, she reaches out to hold the hands, but only if I put them palms facing her...like I'm miming a window between us. I say "hands" and she giggles and reaches up to grab my hands. She's done it for her Pop too, and that was good times.

She has also been extremely interested in her tubing while it's hooked up for her bolus feeds to the G-tube. She spends the entire feeding--granted, it only takes about 3 minutes (perk of the situation)-- reaching and following the tubing around when I move it to add more formula or to try to evade her grasp. She's been showing great attention and focus for extended periods compared to just a couple weeks ago.

Tonight, she really went crazy though. Pop was relaxing on the couch with some Sudoku and Braska came for a visit. She took an instant liking to that little paperback book and spent the next 25 MINUTES grabbing, shaking, giggling, kicking, and generally getting a crazy good workout while loving every second. This is a record by far for activity, focus on one object, strength in her grip on something not very easy to hold, and plain old fun. Here's a couple snippets that were about 15 minutes into the fun time... she'd slowed down just a tad and was relying more on her feet.

Every time we'd take it away, thinking she was done, she'd reach out and grab it again. This was right as she was heading to bed, and she was pretty tired, but it didn't stop her from being super jazzed about this book. When she finally did finish, I filled her little belly and off to bed she went. She was out like a light...even more than her normal instantly-to-sleep pattern. Both of us watched her playing with big looks of amazement. It was great to see. I wish I'd have caught more at the beginning. Even though she looked like she was finished at the end of the second video, she went on for another 6 or 7 minutes. She almost seemed obsessed! We're going to test it out again tomorrow to see if the same item is as interesting.