Tuesday, April 10, 2007

Mommy report: Two steps back

Today so far Braska has been asleep. She will not nurse or take a bottle at all, so they are back to using the NG tube and a pump to feed her at a regulated rate. She took 70 cc from the bottle at 5 am when the nurse fed her, but she wouldn't get up at 8 am when I got here, she only fussed at 9 am when Karen tried to feed with the bottle, and the same at 11 am when we tried to work with her and the speech/feeding therapist. We tried to give her a feeding by NG gavage at about 10 am but after she had about 30 cc, it all came back up...and out her nose mostly! That must be the most horrible feeling. I just hate watching her look so scared when that happens. She immediately falls back to sleep after any bit of stirring. The speech therapist is coming back at 2:30p to see if she's more cooperative then.

The chief pediatrician came to see her this morning and said this kind-of relapse period is not unexpected, but we hope that she would bounce back this evening and tomorrow. She is still very sick, so her great eating yesterday followed by more lethargy today should not be a surprise or great worry unless it would continue downward tomorrow.


  1. Thanks for the update! We continue to pray. It is so hard to be a mom in these situations when you want to be able to kiss it and make it all better. Keep up the strength RK! She will have her happy wiggles back soon! Karen K

  2. Hi baby girl, I love you. Please keep eating and drinking so you can get better. We miss your smiles and wiggles. I am so glad to hear your heart is doing better. We don't want you to have arrhytmia's or feel sick anymore - icky. You've come too far for that, sweet one. Sending teddy bear hugs.....Auntie V

  3. Hey Braska, I hope you are feeling better real soon. Hugs from Vince


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